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What Is Arthrogryposis Multiplex Congenita?
Arthrogryposis (“AMC”) is a condition someone is born with. Each case is unique, as some people may be affected more than others. It's a term that describes someone born with multiple joint contractures (fixed and stiff joints) and covers a wide range of conditions. It is not a medical diagnosis but a description of a limitation of movement of two or more joints in different areas of the body. The joint may be fixed in either a flexed (bent) or extended (straight) position.
In some cases only two or three joints may be affected but in others all joints,
including spine and jaw, are involved. Arthrogryposis is a non-
Arthrogryposis occurs in about one in every 3000 to 5000 live births.
How Does Arthrogryposis Affect me?
I am affected by muscles that haven't developed properly, *clicky* knees and hips,
a stiff right elbow, and a severe curvature of the spine (everything from the neck-
None of this causes any pain, which is why I hate the term "she suffers from..."
How Do I Keep My Independence?
I use my wheelchair to get around -
For everything else?... Well, I pretty much use my mouth to perform most everyday
tasks; the tasks I can't do I have Personal Assistants for -
I use a stick in my mouth to type... I hold a brush, pen or pencil in my mouth to
paint, draw, or write (I had a note-
I train my dogs (and other animals) by tying a clicker around my neck with a string and pressing the button with my chin (I can use my hand, but its more difficult to do when its cold because my muscles don’t work as well), I reward my dog by either using the stick in my mouth to move my hand so i can pick up treats, or just holding the treat in my mouth (what's good enough for them is good enough for me! ).
I can drive a horse and carriage by wrapping 'loop-
I can use my SLR camera thanks to a great gadget invented by Brian (from REMAP).
Anyway, I could go on – but wont ... But I can safely say my neck and jaw muscles
are my strongest! (I can even play a tug-